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Welcome to My Diary

; Raised: £60.604.00
Connah on Polish TV!

picture of me grandad and nanaInteresting Weekend
Posted on: 18/08/2008

Hello everyone. More rain! Last week I was in the Newspaper again, this time it was the Evening Leader for going to Poland. Well a Lady phone Grandad up asked if she could do an interview as she works for Polish TV (TVN24). so she came up on Friday and spent the weekend with us and Auntie Paulina, Uncle Clive and Luzkash. She did lots of vidoeing in the garden with Nana and Grandad and me and she took some "cool" photo's of me playing football with Grandad in the garden. Her name is Dominica and she came all the way from London to see me. You can't see it on tv unless you have a special dish but Dominica said it wil be on the internet in a few days time. I must go as its a busy day, I am off to kids club and then off to the liberay and off to dance class, so see you all soon. Love You All. Connahxxxxx

picture of me grandad and nanaCamper Time
Posted on: 11/08/2008

Hello everybody. Well Grandad came home safely and we had a big cuddle. Next day we all went off to pick up the camper van. When we got there you won't believe it there was big posters of "Ben 10" in the window and John said that Ben had been and left me some presents inside, so I was really excited and inside was was loads of stuff from Ben, a Ben 10 blanket and  new bag for school and a chair and some toys and loads of stuff (thanks John). Then we had to find out about all of the stuff inside the camper and how it works, so Grandad did that while I had some lunch. Then me and Grandad drove it back while Nana came back in the boring car!

At Kids Club we all went down to the beach and had really good fun making sandcastles and playing on the beach. Monty and Scoobie are almost being good, Monty has started to chew Nana's carpet and Scoobie keeps hiding in the garden! Yesterday we went for a drive out in the camper van and took Monty, he really liked and we had packed it out with loads of stuff so we could have our lunch and take Monty for a walk on the beach. If it would only stop raining we would have loads more fun. Dance class tonight. Love You All. Connahxxxx

PS. On the 3rd August it was 2 years since Connah was diagnosed with Neuroblastoma and started his treatment at Alder Hey Childrens Hospital. His prognosis was very poor. Thank you all for your support in word, thought and deed over the past 2 years as we could not be where we are today without you. Love Debbie, Jim & Connahxxxx

picture of me grandad and nanaGood News
Posted on: 01/08/2008

Message from Jim. Good news, Connah's blood's report came back yesterday as normal and he is growing (even if it is only his feet!) but these are both good indicators. Dr Hessling has put the bruising down to "normal boys play". Thank you all for your support and keep those positive thoughts coming as we want to be able to report more good news at the begining of September. Love to you All. Debbie, Jim & Connahxxxx

picture of me grandad and nanaBig Foot!
Posted on: 31/07/2008

Hello everyone, I’m so EXCITED! On Monday Nana noticed that my shoes had been rubbing so she took me to have my feet measured and guess what I am now size 1, that’s “Big Boy’s” shoes so she bought me some new trainers and they are really cool gold and silver, and I am doing really good riding on my bike with them. I even take Monty for a walk while I am on my bike and sometimes he can keep up! Yesterday I went for my checkup at Glan Clwyd Hospital and because I have been getting some bruises the Doctor decided to take my blood, I don’t like needles but Auntie Emma, Auntie Rhian and Nana were with me and helped me have the needle, so I was brave and Auntie Emma gave me a smashing present that Grandad will help me with when he gets home. That’s it for now Love You All. Connahxxxxx
picture of me grandad and nanaSummer
Posted on: 29/07/2008

Hello everyone. What a good Summer I am having, except for falling off my bike and cutting my finger that is! Anyway I have been helping Nana in the garden lots and helped her paint the fence the other day; we got a bit more on us than the fence did! We have been putting Scoobie out in the garden for some fresh air and Nana forgot all about him one day. I said “have you brought Scoobie in Nana” and she rushed out in the garden to find him and couldn’t and I got upset and said “we need Grandad he always finds Scoobie”, but Nana found him in the end.
 
On Saturday we went bowling in Prestatyn and Nathan came and he beat both me and Nana, we will have to have more practice. I have been taking my bike to “Kids Club” and doing lots of good riding, except for when Callum fell off his bike in front of me and I ran into him, that’s how I cut my finger. On Sunday we went up to Manchester and saw lots of people, Auntie Linda & Uncle Les, Auntie Linda & Uncle Tony (who told me to take my Man City top off, No Way) and Auntie Ellen, Uncle Adrian and Phoebe, so we had a good time. Good news Auntie Sylvia is out of hospital and all is well and Uncle Nils is looking after her, That’s it, hope that you are all having a good time like me. Love You All. Connahxxxxxx  
picture of me grandad and nanaAnother Great Party
Posted on: 20/07/2008

Hello everyone, Guess what I went to another smashing party on Friday. It was Leah's Birthday. She is from my Dance Class and we see each other every Monday when we go for our Dance practice with Gail. It was a good party, we must have had a "Goood Time" as when we got home Nana said that she was dizzy from everyone running round and deaf from all of the noise (shssss don't tell her but I think its really her age!). Thanks for inviting me Leah. On Saturday when it had stopped raining we went out to deliver some more of my Birthday Party invitations, but I got in big trouble when I got back as Auntie Carol & Uncle Terry had given me a "Monster in an Egg" the monster has to come out of the gooo and be washed off, but I was rushing to get out and didn't get all the gooo off and put it down on the carpet with my other toys when we went out. Well the carpet needed some colouring up so I don't see why Nana was so upset! But I did say that I was sorry and so will Auntie Carol be when Nana see's her again! Thats all for now. Love You All. Connahxxxxxx

picture of me grandad and nanaLast word on the subject
Posted on: 19/07/2008

I have allowed people to post their comments on Connah's website over the last few days on the subjects of bullying, newspaper articles, school, Connah's treatment and Connah's Fund. This was to show that we have nothing to hide. I also said that anyone can phone or come to the house to discuss any of the above issues. No one has. I now am drawing a line by saying if anyone still wants to persue these issues please e-mail me directly at jim.broom@btinternet.com and I will answer any questions that you have. I have asked my service provider to monitor all future messages and to remove any which are not appropriate for Connah's site.  

I would ask all of the Connah's Appeal Commitee Members to meet at our house on Wednesday 6th Aug at 2pm.

Thank you to all our friends for your continued support.                                                                                               

Jim Broom

picture of me grandad and nanaFun at Ryans Party
Posted on: 17/07/2008

Hello everyone, Last night we went over to Manchester to see my Cousins Phoebe & Ryan. It was Ryan’s graduation party from Collage, he has got some really good results, I hope I do well when I go to big school. The party was really cool and he had lots of his friends round and we all had a good time. I didn’t fall asleep on the way home; I stayed awake so that I could help Nana with the driving as it was late at night. We had a sleep in this morning but that’s okay. Nana is going out today to post all my Birthday card invitations, its going to be a smashing party and Phoebe and Ryan will be coming over for it too. I didn’t practice on my skateboard yesterday as it was raining, Grandad can have a go when he comes home, hope he doesn’t break it as he is getting a bit fat! Love You All. Connahxxxxx
picture of me grandad and nanaResponse to Messages
Posted on: 16/07/2008

Dear All,
Thank you all for your comments on Connah’s website. We have obviously learnt by this experience. A number of issues have been raised in some of the comments which I feel need addressing. For those of you who are not regular readers of Connah’s website and have made a comment I will summaries the situation: Connah’s has number of tumors in his body (we have 11 recorded on his NHS Scan June 07). One of these is very close to Connah’s main artery. The Head of Surgery refused to operate on Connah on the grounds that he may not survive the surgery. The only other treatment which was offered to us was “Full body radiation” at the UCH London. We all traveled down and had a meeting with the Head of Nuclear Science Dept. What they were offering was a treatment which was “On Trial”. This involved pumping a large amount of radiation into Connah’s body, twice over a 30 day period. We asked what the chances of the disease being removed were. We were told that there was a 50/50 chance that Connah would not survive the treatment and in his opinion a 20% chance of success.
 
We came away and firstly discussed the treatment with our GP, who said “don’t do it”. We then looked at a number of websites similar to Connah’s where children had undergone this treatment, the results were not good, if anything it is a delaying treatment and the disease comes back more aggressive and in a lot of cases the result is not good. It was a “No Brainer” given those chances of success. So that is why there is no further treatment through the NHS, except for a 3 monthly urine test and a couple of ultrasounds and a 6 weekly normal health check.
 
Connah’s Appeal Fund: The fund was set up to provide treatment for Connah that is not available in UK. If you look on the internet there are a number of children in the UK in the same situation as Connah. Many of their Families raise funds to take their children, mainly to America for treatment that cost a lot of money an example is Sloan Kettering in New York who provide the Anti-body treatment. Prior to a consultation you have to deposit US$350,000.00 in their bank account. When you arrive they then start deducting from that amount. Friends of ours took their Daughter over this year, had a scan and tests completed the cost US$20,000.00. After 3 months the bulk of their money is still sitting in Sloan Kettering’s bank account while they wait for it to be returned. We have taken Connah to America, Austria and are shortly traveling to Poland. Not one penny of the Appeal Fund money is spent on Air fares, Hotel’s, Food, Transportation etc… You may have read in the papers recently what happens to anyone who buys there own cancer drugs or pays privately for their own treatment, I will leave you to draw your own conclusions, but if anyone thinks that we sit at home every night just hoping that Connah’s illness won’t progress you are wrong. We fight, every single day and the one who fights the hardest is Connah’s Nana, My Wife Debbie, without whose tenacity and dedication I can honestly say that Connah would not be here today.
 At the very start of the fund raising a gentleman contacted me and asked “How do I know that you won’t spend the money on something other than Connah’s treatment”. I e-mailed back “I swear on my life we would not use any monies donated, on anything other than Connah’s treatment”. I stand by my word.
 
I once again apologies about the photo’s, once it was brought to our attention we removed them immediately. It was not our intent to cause any distress. If anyone would like to discuss any issue that they feel aggrieved about, please e-mail through Connah’s site, come to the house or phone.
 
Our goal is to assist God in helping Connah live a long and happy life. Whatever we can do to achieve that goal we will. Thank you to everyone who by thought, word and deed supports us in making this happen.
 
Jim Broom
picture of me grandad and nanaThe Dance Show
Posted on: 15/07/2008

Hello everyone. What a weekend I have had. Grandad had to go back to work, but he will be home again soon. Then Auntie Carol & Uncle Terry came up from Dorset to stay with us. Auntie Linda and Chantelle came over from Rhyl to visit and Dan and me played in the garden with the new skateboard that Aunie Carol & Uncle Terry brought me. I only fell off once, Grandad said next time Auntie Carol has to demontrate how to use it, before she goes home! Anyway on Sunday we all went down to the beach and I took my fishing net that Nana had got me last week and we had great fun. Then in the evening it was the "Big Dance Show" in Rhyl, my very first show on the stage, I was really excited. Lots of people came to see me and thank you all for coming. It was really good and we hope to have some photo's soon to show you. At the end of the show I was asked to give a big bunch of flowers to the Lady Mayoress of Rhyl, but I walked off the wrong side of the stage, silly me and they had to send me back. There was no school on Monday as the teachers are on strike, but Auntie Jenny came and I did some work with her. I am looking forward to when Grandad comes home and then we can get out in the camper van, I bet it rains when he comes home, it always does. Bye for now. Love You All. Connahxxxx

picture of me grandad and nanaGronant School Sports Day Apology
Posted on: 12/07/2008

We apologies to any parents of the few children caught in Connah's school sports day photographs who were upset by us posting them on Connah's website. The Head of Gronant school brought to our attention that it was "inappropriate" for us to use pictures of Connah with other children at the school sports day so the photograph's have been removed. Our intent was only to show Connah living a normal life with his friends. Once again I apologies if this caused offence.

picture of me grandad and nanaSports Day
Posted on: 05/07/2008

Hello everyone. We had sports day at my school and it didn't rain this year! There was lots of races and an obsticle course and I came 2nd in one race and got lots of stickers for being good. We didn't have an egg 7 spoon race but we did have a "frog on a bat" race that I was good at till right near the end when I dropped it, "Oh Man"! Nana and Grandad came and they were shouting for me and everyone had a really good time. My Cousin Pheobe has been in hospital for an operation and has been really brave, well done Pheobe, Love You lots like "whirly tops".

Grandad and Nana have bought a camper van so that we can all go holidays and we can take our organic food with us, that will be good and we can take Monty and Scoobie with us and Grandad has even bought a bike so that we can go biking while Nana sits out in the sun and makes dinner! I am fine and everything is going okay. Love You All. Connahxxxx

picture of me grandad and nanaCenterparc's
Posted on: 29/06/2008

Hello everybody. Me, Nana and Grandad have just come back from Centerparc's Sherwood Forest and we had a "SMASHING" time, its was "Really Cool" and we had loads to do. It was a long way to go, so Monty had to stay in the "Dog Hotel" but Grandad put Scoobie's box in the back of the car and he came with us. We had a little bit of trouble finding it as Grandad's new "SATNAV" told him to turn right into a field! But we found it after a while and went and stayed in a big log cabin in the woods, as we were a bit late getting there we could not get our bikes (Nana & Grandad's I took my own Spiderman one) until next morning. So we did a bit of exploring and then went and had dinner. Next day we were up very early to get the bikes and then I went to "Football School". We had a trainer called Les and we did lots of different skill training and then we had a game of football.

Later Grandad and me went swimming while Nana wrote out some of the invitations for my Birthday Party. We had good fun and we went on loads of slides and even down the shoot in a rubber raft, then I showed Grandad how you can go outside swimming through a passage and I jumped over a ledge and down a shoot that was only for people who can swim without armbands, so Grandad had to follow me and try and get me and the man was blowing the whistle and telling us off. So we had to climb out, naughty us! But it was fun. Later we went for a bike ride with Nana down to play a game of Ten Pin Bowling, Grandad won this time. Then it was back to the log cabin for dinner and bed.

 Next day we had to bike a long way to the "Lazer Combat Area" where we put on helmets and ran around shooting each other with lazer guns, guess who kept shooting Grandad in the back, even though he was on my team? It was good fun and had and we got very hot doing all of the running around and shooting. On the way back it was up a "Big" hill and Nana who was on a 3 wheeler bike helped me by giving me a pull up to the top. After lunch we went and did the "Rock Climbing", I didn't get all of the way to the top, but I had a good go, then we finished off the day with another game of bowling that Grandad whom again! Later we went int the "Kid's Disco" and I did lots of cool dancing and met two nice looking Sisters.

On Thursday it was back to Football School where we did more training and then had two games of football, one game I spent kicking the ball at the wrong goals, what a nit! Then we all did a penalty shootout and I scored 2 goals out of 3 shots. At the end Les said that we had all done really well and we all got a certificate. We had to ride quick then and get lunch as Grandad had us booked on the "Bike Treasure Hunt" and I got changed into my pirate clothes as there was treasure to be found. It was hard work and we had to bike to 10 place's and find differnet clues. We weren't last, but we were close as Grandad sent us the wrong way and Nana got cross as there was lots of hills to ride up. At the end I got a gold badge as treasure for getting all of the numbers right.. Later we had a bath and got changed and went to the "Robin Hood Banquaet" and Robin Hood & his Merry men come on the stage and do a story while we have a big dinner, they even do sword fighting with the Sherriff and then Robin marries Marian and at the end we all have our photo taken. I was in my Robin Hood outfit with my bow. On the way back to the cabin I stood on the back of Nana's three wheeler and held onto her shoulders while she "puffed" up the hill to get us home as it was late at night.

Next morning we were all up early to pack and hand our bikes back ready for the trip home. At breakfast time we were having lots of animals come to the back door for food. We had some squirrels and rabbits and ducks and a hedge hog and on the very last morning a big Swan came and Nana fed him some bread. Oh we also met Steve and Mat from Prestatyn and Mat goes to the school where I go to "Dance Class". On the way home we calledin to see Great Grandma in Glossop and had tea and cake and then we went and saw Auntie Sue at work and later we went to see Aunie Ellen and Uncle Adrian and Ryan, I missed Pheobe as she was having a sleep over at her friends house, but she left me a present and I took her one from Centerparc's. We had a Great time there and met loads of people and I hope I can go again sometime. We were all very tired when we got home so we could not get Monty from the "Dog Hotel" until the next day, he was really pleased to see us and we all were home again together. Hope that you can go to Centerparc's and have as much fun as I did! Love You All. Connahxxxxxx

PS When I got home I had a present waiting for me, it was a book from Linda's (Aberdeen Mall) Brother, Jac. Its called "Move over Rover" and its all about Danny and his dog Rover. Also Jac wrote me a message in the front of the book and in the back. Thank you Jac & Linda. Grandad read me the story before I went to be on our first night home xxxxx

picture of me grandad and nanaCheckup Time
Posted on: 16/06/2008

Hello everyone, I went for my check up today and the Doctor says that I am fine. I have grown 1cm since my last visit 3 months ago and put on .5 kilo and that puts me exactly right on the height / weight scale for my age. The Doctor also told Nana that I should go back to school for longer, rather than just my half day, but we are having a bit of trouble with school on that so perhaps it will be sorted out soon and I can spend more time with my friends. I got a smashing new book from Auntie Sylvia & Uncle Nils today, she remembered that I like "Pirates" and sent me a book with magnetic pirates, cool! Also I was at dance class tonight and Gale told us all well done from Saturday and that our group got 31 points out of 50 and we did very well. Also we learned some new moves tonight and I have to practice at home before the show in July. I was impressing the Doctor wit my dancing today and a little girl called Mia who I met. Thats all for now. Love You All. Connahxxxxxx

picture of me grandad and nanaDance Time
Posted on: 14/06/2008

Hello everybody, school has been going well this week and I have read some new books and I got a merit mark and two house points and two stars for working so hard, how cool is that! Grandad got home safely on Tuesday night and we had a "Big Cuddle" I am glad he is home. Nana has been working hard in the garden and I have been messing around in it. Nana & Grandad had to go to a big meeting at school about me going in for longer during the day, they are still talking about it as I have to have a letter frem the Doctor. Auntie Jenny was here in the week and we did lots of hard work and some sum's too. We had to go shopping and get some dance pants and pumps for the compition on Saturday, but we couldn't find an orange tee-shirt so I had to have white instead. My friend Jack has been in hospital as he was not feeling well but he came home on Friday. Monty had to go into the vets and have an operation  as he was having a bit of trouble but he is better now. But today was the big day, we went early to the Nova in Prestatyn as they were holding a big dance compition so we went and watched all the other teams and there were some really good dancers and then the team that I am with did our dance and we were realy good too but we didn't win a prize this time, thank you Gail for teaching us. Then I went to see Nicola and have my hair cut and I showed her some of my dance routine and she put some gel (quick drying this time) on my hair and I look all spikie! Its been a long day so I'm now off to bed and give Nana & Grandad a bit of a rest. Night night, Love You All. Connahxxxxx

PS Lynda Grandad says if there is anything that Nana & Grandad can do for your friends Daughter Emma please e-mail him through the website xxx 

picture of me grandad and nanaWhat's in Grandad's wardrobe?
Posted on: 08/06/2008

Hello everybody, you'll never guess what I found in Grandad's wardrobe the other morning? Let me tell you I was a good boy all day and slept in my own bed so when I woke up in the morning I thought that I should have a reward from the "Good Fairy" and I didn't see one, so I thought "maybe she has hidden it" so I looked in Grandad's draw, nothing and I looked in the computer room nothing and then I looked in his wardrobe and found 2 New Ben 10's and a bag full of "Pokemon" with all of the ones which I don't have, yipeee! But Nana was not pleased and she said that the "Good Fairy" would not be pleased either that I had found the secret place. Any way she calmed down enough to take me and my friend Dean bowling in the afternoon, but she did come first as I was showing off and kept missing. Nicola from the hairdressers is coming to visit and have a go in my trampoline so that will be fun. When I said I was a good boy all day I did forget to say that when Nana was on the phone to Sarah I climbed up on the cupboard to get one of my biscuits and smashed one of her best dinner plates and Monty ran over and was trying to eat the bits of broken plates, so I did have to say a big "Sorry" for that. Grandad is home soon and he is going to show me how to play "rounder's" so that I can go back and play on Morgan's team up at St Greg's. That’s it for now. Bye for now. Love You All. Connah xxxxxx  
picture of me grandad and nanaThe walk in Rhyl
Posted on: 02/06/2008

Hello everybody, Just to let you know that Nana and me did the "Race for Life" in Rhyl yesterday, the weather was a bit hot but we were okay, we saw Nicola from the hairdressers and had lots of people to talk to. But the big news is I beat Grandad's time. I had to leave Nana and run ahead but I got in 50mins and 23 secs, Nana nearly made it in 53 mins. Thanks to everyone who was cheering us on and to Nicola for waiting for us at the end as she was fast and did it half an hour. So we both got medals and next time I am going to run round with Grandad! James we didn't see you or your Mum, I hope that you were not doing it in the afternoon as it was pouring in rain! Later we went to Uncle Clive and Auntie Paulina's for a drink, I played football in the garden while Nana collapsed on the settee with a coffee. Bye for now. Love You All. Connah xxxxxx PS Love to Great Granma who has been reading my diary and get better soon to Auntie Sylvia who has been in hospital.  
picture of me grandad and nanaRace for Life on Sunday
Posted on: 31/05/2008

Hello everybody, I am having a smashing time on my school holidays. I have been helping Nana and I have been going to "Kids Club" to see my friends and playing with Monty in the garden and guess what? The "Good Fairy" heard all about me being good and she left me a present while I was asleep, I think Grandad spoke to her as the "Tooth Fairy" didn't come last week. Any way I am still being good. Thank you to everyone who sponsored Grandad on his run, he raised 485 pounds for my Appeal and thank you to Dan who ran in the Great North Run and raised another 300 pounds. This week lots of Babies have been arriving as well, Nana said that the Baby Stork has been very busy so Auntie Rhian is a Nana again and Auntie Heather & Uncle Billy are both Grand Parents for the first time so Congratulations and that’s 2 more Birthday Parties I can go to when they grow up a bit! Nana & Me are going to do the "Race for Life" on Sunday in Rhyl so come and cheer us on if you can. Grandad said that there will be a prize for me if I can beat out time in Scotland (he doesn't know I am taking my scooter!). Bye for now. Love You All. Connahxxxxxx
picture of me grandad and nanaAnother tooth bites the dust!
Posted on: 28/05/2008

Hello everybody. I had another wobbly tooth the other day and I played with it for ages and it finally came out, but guess what, the Tooth Fairy didn't come when I put it under my pillow, Nana said I should let them come out on there own in future. School holidays have been good this week, but we have not been able to get out in the garden much because of the weather. Yesterday we went to the hospital for my hearing check up and my hearing is still the same which is good, but I am getting some new hearing aids as I have had these now for 10 months. But no tv last night as I was showing off in the hospital and Nana got upset with me. Thanks to Nicola and the girls at the hairdressers, they are all going to come to my Birthday Party in Novemebr, I keep asking Nana "How long is it to my Birthday Nana"? If I keep asking her she might bring it forward a few months! Thats it for now, Love You All. Connahxxxxx

PS Auntie Sylvia is going in hospital this Sunday so be brave Auntie Sylvia and don't start jumping around off the chairs or Uncle Nils won't let you have tv when you go home, just like me!

picture of me grandad and nanaPicnic's and no front teeth!
Posted on: 24/05/2008

Hello everybody. I have been doing good work all week for Auntie Jenny, but last weekend I was in trouble at Auntie Ellen's. I kept throwing Hector's toy in the house and he was in trouble for going and getting it (Auntie Ellen's dog) so I got in trouble too, so Nana said no tv for 2 nights!!!! But it was okay I got a big hug from Cousin Pheobe before I left.

My over front tooth fell out, so now I have no front teeth, Nana says that I sound very funny, I don't know why! But I got a pound from the "Tooth Fairy" so it was okay. We had a picnic at school as the weather has been really good, so I took all my Organic stuff to eat and had a smashing time and played lots of games on the school field. Then I went home and played football in the garden with Dad so I was really tired at bed time. We have a holiday from school now so that is good and my friend Dan is coming round to play today then I am going to see Nicola and the Girls for a hair cut. Thanks Nicola for sponsoring us for the walk in Scotland. Love You All. Connahxxxx

PS Jennifer thank you for your message, Grandad has been to Canada lots of times and says that it is really nice, but it gets very cold. We have relations in Bridgend!

picture of me grandad and nanaBowling!
Posted on: 18/05/2008

Hello everybody. School was good this week and I had lots of fun with my friends in "Kids Club" too. This Saturday we went bowling at the Ffrith Beach Fun Centre, it was good and guess who was the best "again", yes it was me. After that Nana took me to look at some "camping stuff" as she said that Grandad might take us all camping when he is home during the Summer. That sounds Great and I will ask one of my friends to come and we can have a camp fire and all sorts of stuff. I have been good for Nana and I have been making my own bed and putting the mats away off the table after dinner and doing my reading. I also lost another tooth last week, that is 4 now, but I have not had any new ones come through yet. Must go as its time to take Monty for a walk, we are still practicing for Nana's "Race for Life" walk in June and we have to get better to beat our last time! Love You All. Connahxxxx

picture of me grandad and nanaSummers Here!
Posted on: 09/05/2008

Hello everybody. We have had lots of time out in the garden. Nana has been doing lots of mowing and Grandad has been doing strimming and gutters and I have been playing football with Monty and Scoobie has been out in the grass trying to escape, he is really hard to find if you don't watch him.

At school we have had stories outside and I had a spelling test and did well. Auntie Jenny has been and I have done good reading. I have had lots of messages on my site, thanks everyone. At weekend we are going to Rhyl to see a show "The King & I" Some of the boys and girls from the Dance Club are in it and we want to see them. I want to be in a show soon! Guess what, after all that sunshine it is raining, "oh man"! Bye for now, Love You All. Connahxxxx

picture of me grandad and nanaFlying Visit
Posted on: 02/05/2008

Hello everybody. I have been having loads of fun lately and a lot of rushing around, but I'm not tired, not like Nana & Grandad. We still have lots of photo's to put on my site so keep watching out for them. Well when we drove back from Scotland it rained all of the way from the border into Wales so that was not much fun. I don't think that you miss all of that rain Auntie Jan, bet you have loads of sunshine in America! Any way we got back late and next morning we had to be up early again as we were going to the airport and guess who didn't want to get up? No not Nana it was me, so we were late leaving for the airport and them there was a problem on the road so we were very late getting to the airport and we had to run all of the way to the plane and everyone else was onboard! Still the flight was good and we looking at Auntie Sylvia's Pirate book all of the way to Paris. We then had to wait for another plane so we went and had some lunch. Oh I forgot, Nana kept getting stopped by some men as she had put my organic drinks in her back and they wouldn't let her take them on the plane. That is silly not letting you take organic on the plane, so I had to drink it quick!

We were sat waiting for the next plane and Grandad went to the shop and bought me "High School Musical Concert" DVD which is great so I could see it when we got to the hotel, I like the songs. We were watching the screen for getting on the next plane and Grandad saw a sign saying that "Boarding was now closed" on our flight, he was mad as they had not even said "get on" so he made Me and Nana run all the way down to the gate, we even just ran through the security men (but they stopped Nana, again!). Well when we got to the gate the man said that it was a mistake on the tv and no one was even on the plane yet! Nana was really cross, with Grandad!!!! We got on the next plane and flew over some big mountains covered in snow, but when we got off it was lovely and sunny. When we got to the hotel we all went out and had some dinner at an Italian resteraunt and I ate all my spaghetti! We had to be up early next morning so we all went straight to bed. Next morning it was sunny again and we wen and met some new friends: Erika, George, Brigitta and George again. They were very nice and looked after us all morning, Erika even took me outside to a little park while Nana & Grandad talked to George. In the afternoon we said goodby to them and as I had been a good boy we went off to the park and had a great time playing on a giant slide and in a fort with some other boys and girls and on the way back to the hotel we saw some "red hot trainers" in a shop so Nana & Grandad got them for me, they will really help me run faster, watch out Grandad I'll be faster than you next time!

Next morning it was off back to the plane for the trip home and we got back to Wales in the evening. We just curled up on the settee and watched Jurassic Park II and then we all went to bed, all our adventures were over for a while, but someone was still missing! Monty came home next day and Grandad bought him to school to pick me up I was so pleased to see him we were playing all through the house and then he came and sat on my lap while I watched some tv. Grandad will try and put some more pictures on tonight. Thank you to everyone who put messages on my site while I was away and thank you to everyone who supported our walk. Love You All. Connahxxxxxx

picture of me grandad and nanaCatching Up Again!
Posted on: 01/05/2008

Its Grandad just giving you all a quick catch up over what has been happening this last week. Last Thursday we put Monty in the kennals for his holiday and Scoobie went off to Billy & Heathers for his outting. We packed up the car and on Friday morning set off for Ellon in Aberdeenshire Scotland. It was a long drive up, about 8 hours with Connah asking the usual "when will we be there" every 10 minutes. We finally arrived at about 7.30pm at Sylvia & Nils house. After dinner we were all ready for bed, except for Connah who sat up reading the new Pirate book that Auntie Sylvia had given him, eventually he went off to sleep.

Next morning we were all up bright and early and into our walking/running gear. Nils went off to Aberdeen to pick up Scott (The Trinity Mall Monster). We all set off for Balmoral where the race was being held. The country side was lovely on the drive, however Connah is not a "countryside person" so had to be entertained with "eye spy" songs and his favourite music on the CD. The event was very well organised and attended, even though we arrived early at 10am we were directed to the furthest carpark away from the event. So we had about a 2km walk before we had even started, which was hardest for Scott as he was carrying the Monster in a huge sack.

So we eventually arrived at the start, which was very well laid out in avery scenic vally close to the castle. There were a number of stands sat up and Connah rushed straight over to the "Fire Brigade" stand to see Scotish Mr WelliPhant & Mrs Bear, whom he entertained doing cartwheels and running around laughing and telling them all about his friends down in the Prestatyn Fire Brigade. The weather was very temprimental, one minute glourious sunshine the next roaring winds, black skies and rain. Anyway Scott went off to transform himself and we all had a quick drink before the start of the 5km walk. Scott came back as "The Mall Monster" surrounded by children all having their photo's taken. The idea was that Uncle Nils & Auntie Sylvia would walk round with "The Mall Monster" to give encouragement and drinks to keep him going. Connah & Debbie would just have their photo's taken at the start and then walk a little way and then drop out. Well anyone that knows Connah would guess that this plan was doomed to failure. So about 700 people set off to complete the 5km run/walk with Nils, Sylvia and the Mall Monster at the back, Debbie and Connah started off with them and when it came time to drop out Connah would not stop, so Debbie quickly spoke to one of the officials who allowed them to go on. However as this was not planned Debbie was still wearing rain coat, body warmer, rucksack etc, whilst Connah just threw his vest off over the fence as he ran past me to catch up with the Monster!

As you can imagine the walk was not on level ground and soon they all had a couple of small hills to climb, Scot did an excellent job. Connah was soon slowed down until he found a big enough tree to hide behide so that he could relieve himself, then he was skipping along and laughing and enjoying the sunshine that had come out. I met up with them at about the 3km mark where the course passed close by the start point and was able to relieve Debbie of her bag, coat and body warmer and take a few pictures. They all finished marvalously in just over 1 hour. Connah even received a medal and a tee-shirt. Well done to them all especailly Scott who went round as the Monster and raised almost £500 for Connah's Appeal. Nils, Sylvia & Debbie did an excellent job of keeping the Monster refreshed and Sylvia & Nils also raised over £300 for Connah. But the biggest Well done has to be to Connah who walked round the 5km's without a single complaint and would have been in under an hour if he not spent so long behind the tree! We are so proud of our Grandson! After receiving his medal the first thing he did was to run over to Mr Welliphant to show him and do an extra couple of cartwheels just to show that he was not tired out by the walk.

After that it was just an hours wait until I had to run my 10kms. Other than a huge hill in the middle of the run and a lot of huffing and puffing I completed it in a reasonable 52 minutes. Thank you to everyone who sponsored me. Shortly after the race we walked the 2kms back to the car and had a lovely scenic drive back to Ellon in glorious sunshine. Next morning, with a few aches and pains (Debbie and I not Connah) we set off back to Wales. We would like to thank Sylvia & Nils for looking after us. Scott for his remarkable effort and everyone who supported Connah who is going to complete the "Run for Life" with Nana and he says that he will beat Grandads time of 52 minutes, so "Big Wee" before he sets off. Love You All, Debbie, Jim and Connahxxxx

picture of me grandad and nanaLots to do
Posted on: 23/04/2008

Hello everyone. I have been working really hard all week and I got a Merit Award at school for my reading plus 2 special stickers for doing sums with Auntie Jenny. Auntie Emma has been to see me and so has Auntie Jean. I even had time for football in the garden with Daddy and Monty. But we have a busy time this weekend, we are off to Scotland to see Auntie  Sylvia and Uncle Nils. They are both going to walk 5kms for my Appeal and Grandad is going to run 10kms around Balmoral Castle. We are then going to drive back on Sunday night and we would like everyone who Loves me and wants to help me get more better to send me positive healing thoughts on Monday night at 21.30hrs (9.30pm) UK time. I should be fast asleep by then and it will help me wake up full of energy on Tuesday morning.

Monty and Scoobie will have to go on their holidays too whilst we are away so I hope they have a good time. Grandad and me went and had our hair cut with Nicola and the girls, but Nana wouldn't let me have any coloured gel on this time! Any way I will let you all know how we got on when we get home. Don't forget Monday night please. Love you All. Connahxxxxx

picture of me grandad and nanaGrandad's Home Again!
Posted on: 18/04/2008

Hello everybody. I am fine and Grandad is home so I am really, really Happy. I am working hard at school and doing some very good reading. Auntie Jenny said that I should get a certificate for my reading, how good is that! We have a project at school on "At the Beach" Nana gave me some old photo's to take in, even one of My Great Great Grandma Broom at beach at Southport, plus a big Conch shell that Nana & Grandad & My Dad got from the beach in Oman when he was in the Army a long time ago.

Dance class is going well and we are going to see a show "The King & I". Some of the Boys & Girls from Dance Class are in it. Perhaps I will be in a show soon! Last night I went bowling in Prestatyn with my friend Danial from school. I was good but Grandad beat me, just! Auntie Carol up in Scotland did a picture for me and auctioned it off and raised £150.00, thank you Auntie Carol and thank you very much to the Lady that bought it. Thank you very much also to everyone that is sponsoring Grandad for his run next week, especially Karla & Eric in Dubia and Joanne in Manchester. Must go as Auntie Jenny is here to do more school work, Oh Man! Love You All. Connahxxxxx

(Connah's Grandad) A few days ago we wrote about Samantha Hugh's who had relapsed and was not very well. Unfortunately Samantha died a few days ago. When this illness comes back it works very rapidly and a lot of the time there is no way to stop it. We often read Samantha's website and she was a lovely little girl her Parents worked hard to see that she did everything she could to have a good life. God Bless You

 

picture of me grandad and nanaSkinned knees & Dance Class
Posted on: 10/04/2008

Hello everyone. Well its been back to school this week so I have seen all of my friends again. Grandad says that I am a "a am a nit" as I fell over in the playgound and cut my elbow and my knee. But I was okay, well I was okay "after it stopped bleeding". Anyway school is going fine and on Monday night I went to Dance Class and learned some new moves to show Grandad when he gets home, only 5 more sleeps, Yipeeee! He is in trouble with Auntie Jenny though, he bought me a new jigsaw to do, its "Power Rangers" which is good but its in the shape of a ball and Auntie Jenyy and me spent half an hour trying to do it and got nowhere, so Auntie Jenny said "wait till your Grandad comes home"! So he is in for it hehehe. Monty is being good, except when I pull his tale and then he chases me all round the house. Nana is over her aches and pains and has started training for her walk in the "Race for Life" in June. Any way must go and do some reading, bye for now. Love You All. Connahxxxxx Please take a moment to send specail thoughts to Smantha Hughs as she is not very well at all.

picture of me grandad and nanaI am a Dalek!
Posted on: 06/04/2008

Hello everybody. I was a bit tired from all my adventures when I came back from Centerparc's so I had to have a little rest. So after watching "Dinasaur Kingdom" for 10 minutes I was back to my usual self chasing Monty round the house and driving Nana nuts. I went to "Kids Club" for a few days last week as its still the school holidays and had a good time with some of my friends from school. On Friday I received a smashing parcel from Aunty Joanne in Manchester it was a box with some smashing books in all about the "Gruffulo", I like the one about the mouse who tricks the Gruffalo into thinking that everyone is scared of him. Any way thank you very much to Aunty Joanne and her Family for sending me this smashing present. Grandad can read them to me when he gets homexxx. Grandad is training hard at the moment as he is going to run in a 10km race up in Scotland when he gets home. So if anyone would like to sponsor him he says that he can do it in under 1 hour (he is getting on now) please send him an e-mail through my website. He is up to 7km at the moment! So this weekend I went with Daddy to the Ffrith Beach play center again and had a couple of hours running round. While I did this Nana went shopping and while she was in Marks in Rhyl she saw some tee-shirts that are from Dr. Who and when you press them they say "I am a Dalek" and make the sound of the Tardis, they are really cool. Did you see I had a messege from Chantelle's Sister Giselle (She is HOT) we did lots of dancing at the disco at Centerparc's and I think she likes me, lots!! Thats it for now, back to school on Monday! Love You All. Connahxxxx

picture of me grandad and nanaThanks a lot!
Posted on: 31/03/2008

Hello everybody.  I am starting to get over all my bruises from Centerparc's, Grandad says "Thats what happens when you play hard, and fall off your bike!". I really did have a smashing time and the pictures will be on as soon as Grandad gets home. I met some new friends and would like to say thank you to  Phoebe, Chantelle, Jack and Charlie for helping me and looking after me and having a good time playing. I am really tired now I am home (but Nana is even more tired than me). Its back to normal routine today but no school for another week. Nana says that she will take me to the Ffrith Beach to burn off some energy at the play center. Thats all for now. Love You All. Connah.

PS Jack Nana says that she has another Robin Hood hat for Charlie so if you e-mail Grandad your address she will send it.

picture of me grandad and nanaMore of Everything!
Posted on: 28/03/2008

Hello everybody. I have not stopped at all since being here. Yesterday I did more rock climbing, quad biking, swimming and biking, this time I didn't fall off going down the big hill. But Cousin Phoebe had to go home, I miss her. Hope your wrists feel better soon Phoebe and thanks for coming we had a "Brill" time. Next time when I come with Grandad he said he will take me on the "Laser Shooting" thats running around shooting each other and hiding, Nana's a girl so she didn't want to do that!!! Its back home tomorrow and we then go and bring Monty and Scoobie back from their holidays, I hope that they have had as much fun as I have. Thanks again to Nicola's Fund for sending me here. Love You All. Connahxxxx

PS Keep training hard Ben, Grandad says you will need it for the Army.

picture of me grandad and nanaCenterparc's Yahoo!
Posted on: 26/03/2008

Hello everybody. I am having such a good time here at Centerparc's. We all have bikes and ride everywhere, even Nana! We went swimming yesterday and it was great, I even swam without arm bands on and didn't sink, that was good and we did ten pin bowling and I won, but the lane has a few dents in it now as I kept dropping the ball instead of rolling it! Also I lost a tooth while I was eatting and I swallowed it and I was really upset as I didn't think that the Tooth Fairy would leave me anything, I did keep looking for it but couldn't see it, yuk!!! But when I woke up in the morning she had left me a whole pound coin! Nana said that she must have seen me smiling when I was asleep and noticed that I had a gap in my teeth, she has good eyes in the dark that Tooth Fairy! Must go I am shooting arrows with Robin Hood in 10 minutes and we have to ride there on our bikes. Nana told Grandad that she will need another holiday to get over this one, he said "Thats okay we can all go to Centerparc's in Penrith" That will be Great! Love You All. Connahxxxxxxxx

 

picture of me grandad and nanaPacked and ready to Go!
Posted on: 22/03/2008

Hello everyone. I started packing my bag for Centerparcs yesterday, in went my swiming trunks and my arm bands and my goggles and my Manchester City shirt and pants and that was me all ready to go for Monday! But I think Nana my want to put in a few more things, but I couldn't think of anything else unless its a few Ben 10 toys. Chantelle and her Mum Linda visted yesterday and we had great fun and Monty had a good time runnning around too. I showed off some of my "Cool Dude" disco dancing stuff and Nana made cake and sandwhiches, don't worry its fresh Organic bread and Organic cake and we are taking all our food with us. Nana says that Monty can't come with us so he has to go and stay with some "doggie" friends down the road. I am really looking forward to having a good time at Centerparcs and thanks very much to Nicola's Fund for arranging everything, I hope that we have some good pictures to show you all when we come back. Have a good Easter Holiday everyone and keep warm! Love You All. Connahxxxx

picture of me grandad and nanaVisit to the Consultant
Posted on: 17/03/2008

Hello everybody. I had the day off school today to go with Nana & Grandad to visit the Consultant and have a ultrasound scan done. That jelly is very cold on your belly, the Dr. had a good look all round my tummy and he said that nothing was growing and some of the tumours had calcification and some had no blood going into them. He didn't look at the ones in my neck or under my arms, that will be next time. Then we went through to see Dr. Bernadette, she had a feell around my neck and my stomach and you know what she said? She said that I was getting a FAT belly! I don't believe it with all of the running around that I do. Any way she said that things are fine and she will see me again in the middle of June. So that is some good news, yipeee.

Also guess who is in trouble? Nicola & me. I went for my hair cut on Saturday and Nicola put all green and red gel on my hair as Wales was playing (and they won). Well I leaned back on Daddies white jacket and got it all red & green, then I went home and dived on the settee and put my head on Nana's best cushion and made it all red & green and then I put my hands on my head and then put my hands on my white pants, so Nicola is in for "Blue Blisters" off Nana (hahahaha). Tahts all for now. Love You All. Connah

picture of me grandad and nanaEaster Egg Draw
Posted on: 15/03/2008

Hello everybody. Nana and Grandad went to see Dr Jessop a couple of days ago to have the tickets drawn for the Big Easter Egg. It was won by Andy Cartwright from the place where they make the aeroplanes at Broughton. There were lots of other prizes and Nana has phoned up all of the winners and told them and there prizes will soon be in the post. Tomorrow I have a Big job, I have to wee in a big jug from 24 hours, well not all of the time. This is to take to the hospital on Monday when I go to have my check up. They will check the VMA and tell Nana and Grandad how things are, but we feel that things are going very good. Nana said that they will also be having a look inside me with an "Ultrasound" machine to see how my lumps are doing.

Yesterday I was getting a lot of cuddles from Nana and Grandad and Daddy, I do anyway but these were extra ones! Today I am off to the play zone in Prestatyn and then I am going with Grandad to see Nicola and have my hair cut, I might even have zig zags again. Monty is still not being too good he keeps getting too excited when we are playing and then makes a mess on the floor so Nana gets really upset with him! Any way must get back to my breakfast as we went to bed really really late last night. Love You All. Connah.

PS. (Grandad) We heard yesterday that a little boy called Callum who was in Alder Hey with Connah when they were both having Chemotherapy had died during his bone marrow transplant. We know that its not just the illness that is the killer, the treatment at times is so severe that it can also have fatel effects on these young bodies. Our thoughts go out out to Callums Parents and Family.

picture of me grandad and nanaJack Brown
Posted on: 14/03/2008

Message from Grandad.

As many of you know there are lots of other children out there suffering with the same illness as Connah. One of them is Jack Brown. His family are over in America at the moment having treatment for Jack. I have taken a clip from Jacks site which tells about 50 Police Officers who are going over to New York to raise funds for Jacks treatment.

(Many of you who follow Jack's story could help us now.  On 2nd May 2008, approximately 50 Police officers from London will fly to New York and will run over a two day period to try and help us raise funds for research at Vermont.  We are still working on the www.j-a-c-k.org website, but hope by next week it will be effective with an online donation system.  We need your help to help us publicise the event and help us raise funds for this vital research.  Help us put up flyers, send out press releases, send emails to your contact lists at work and at home, just help us spread the news...  You could help us save the lives of hundreds of children.   A cure is within reach, but lack of money bars the way)...  

If anyone can assist in publicising this event to help Jack please do. Connah and Jack have not met but we are in contact with his family on the phone and through e-mails and we keep up todate on what is happening in America for Connahs future treatment. Thank you. Debbie, Jim & Connah

picture of me grandad and nanaDance Class
Posted on: 11/03/2008

Hello everyone. Well I had another smashing time at Dance Class last night, I was doing my impression of "Cool Dude", Grandad will have to take some more pictures so that you can see how good I am. Auntie Jean came today for my Healing Hands and then it was off to school. A Lady came to check my hearing aids today at school and while she was chatting with Nana the fire alarm went off and we all had to get out of the building and guess who forgot his coat, thats right it was me, what a nit Grandad said! Then tonight when I came home from kids club I had to show Nana my poorly toe, I had dropped a wooden brick on it and it has all turned purple at the end. Thats it for today. Night night everyone. Love You All. Connahxxxxx

PS Cousin Phoebe had to go to the hospital today, but she was very brave, just like me, Chin up Pheobe's. Hope that you saw lots of nice houses in Atlanta Auntie Jan, perhaps we can have a BBQ when we come over, but I don't think they will let monty on the plane, so we will have to show him a picture of Jacob when we come back.

picture of me grandad and nanaDays Out
Posted on: 10/03/2008

Hello everyone. Well I'm over my little bug now so no more being sick, but stil not eatting the same yet.  Yesterday me and Dad went to the new indoor play centre at Ffrith Beach. I had a smashing time running round for 2 hours, jumping and climbing and making some new friends. Nana and Grandad were busy selling raffle tickets for the Big Easter Egg draw which is tomorrow. Then me and Dad took Monty out for a walk in the woods and we got a bit muddy, oh well! Today we went up to Glossop to visit Great Granma, it was a long way and Monty came in the car, he was fairly good and Great Granma was pleased to see us, she gave me a little tiger from Peru to put near my bed to keep me safe at night. Then we went off to see Auntie Ellen, Uncle Adrian and Pheobe. Monty went to see Hector. We all had a smashing time and a lovely dinner. Monty and Hector chased each other all around the house and Pheobe showed me her "Pokeman" card collection. We had to leave early as Grandad thought that the weather might get bad because there is a storm coming. I have some new pictures which Grandad will put on the site tomorrow as its a bit late now. Night night everyone. Love You All. Connahxxxxx

picture of me grandad and nanaOh Oh were in trouble!
Posted on: 07/03/2008

Hello everyone. Me and Grandad are in trouble again! Grandad's not been well and he has this cough that gets worse in the night and the other night he was keeping Nana awake with it and she told him to "Put a Sock in it"! Then last night when I was having my bath I felt really sick and the next minute I was sick loads all in my bath (Grandad got his hand in and cleaned out the blockage, yuk!!!!). Then I kept Nana up ALL Night till 5am being sick. They were worried as I could not even drink water without being sick. Any way I seem to be a bit better this morning and I'm having little drinks and trying a little bit of breakfast too. So no school today and its "Toy Day" just my luck. Auntie Rhian (CLIC Nurse) came this morning and she is really surprised at how I have grown. Talk to you all later. Love Connahxxxxxxx (PS We think that its a bug going round the school, so not related to Connah's condition).

picture of me grandad and nanaCatching Up!
Posted on: 04/03/2008

Hello everybody. Sorry it has been a while since my last update, but Grandad has been really ill with a flu bug and is still not too well and he does not like me to mess with his computer while he is not there, maybe in a couple of more years I will do it on my own. Any way Nana and me are fine, we did not catch the bugs! School has been going well and I have got through lots of reading books. I went to Dance club last night for the 3rd time and had a smashing time with Gail & Tara but I still have not been in the show yet! Nana is doing a good job of selling lots of Easter Egg Raffle tickets and so are all of the people helping her, including Auntie Sylvia, Auntie Carol, Keith from Aerospace, Steve next door and lots more people.

Monty is behaveing himself and has not had a bath this week as its too cold. He did have a chew on Nana's new slippers which I got her for Nana's Special Day last Sunday but she let him off. Nana was talking to her Auntie Gwen who lives in America the other night and she lives in North West Georgia just above Chattenooga so that is where we hope to go and visit them possibly in the Summer Holidays. We might see Capt Wil Cox when we go over on the plane again. I wil make sure that I am wearing my Capts Wings so that they know I can fly the plane too!

Did you see that I got a message from Sparky the Fire Dragon, how cool is that! Thanks everyone who has been leaving messages for me and sites for me to visit. We might be taking Monty up to see Cousin Pheobe on Sunday and if Grandad is well we will go and vist his Mum, My Great Grandma who lives in Glossop, hope it doesn't snow though.

Thats all the news for now, I am full of energy and still running Nana and Grandad ragged, but thats what little boys do, isn't it? Love You All. Connahxxxxxx

picture of me grandad and nanaBusy Week!
Posted on: 23/02/2008

Hello everyone. We have had a busy week. Grandad came home on Tuesday night from work and we all had Birthday cake, there was not enough room for all his candles though so we just had candle numbers! I had to go to the Doctors as I had a rash, the Doctor thinks that it was just with the oil that we use in the bath for mu machine so we have stopped for a couple of days to let it clear up. We had a great time yesterday as Monty needed a bath, so we got the big bucket out of the garden and he went for a swim! He was a good boy really and he got a treat afterwards. Today we took him down to Presatyn for a walk up the high street. Everyone was stopping and saying "What a Lovely little dog" he is a real "babe magnet" and lots of girls were coming up! I have had loads of nice messages on my site especailly since Benn did my video on YouTube, it is FAB!

Nana has been really busy going round selling raffle tickets for that Huge 4.5kg Easter Egg, someone will really enjoy Easter when they win that! I was at the Barbers today and the girls put wavey lines in my hair and then they put green and red jell in my hair as Wales was playing rugby today and they won yipeeee! Aunty Jean is coming to see me tomorrow for some more healing so I had best get off to bed. Love You All. Connahxxxx

picture of me grandad and nanaGood Again!
Posted on: 16/02/2008

Hello everyone. Guess what, I've been good again (well most of the time really). I did a nice picture for Grandads Birthday Card and then I drew a nice picture with a flower on for Nana as she was not feeling very well. I have been taking Monty for walks and helping Nana around the house. So today a present arrived from Grandad for me being a good boy, it was a new "Ben 10" quilt cover a nd pillow case, how cool is that. Nana didn't know that it was coming so she had only just changed the bedding, so I will help her change it again tomorrow.

I had another surprise as well, the mail came while I was eatting my cornflakes and there was a letter for me. When I opened it it was a valentines card from Aunti Carol in Scotland and guess what it was all full of little hearts and they all fell in my breakfast! I thought it was funny. Nana was busy today, while I was in Kids Club she was out selling raffle tickets for the "BIG Easter Egg" Raffle. Nana made me some "Green Tea" the other day and she put some apple juice in as she thought that I might not like the taste. Well she was wrong I really did like it and I drank the whole litre in two goes and geuss what else if you drink the whole litre in two goes it really really makes you go to the toilet afterwards, a lot! Thats all for now, only 3 more sleeps till Grandad comes home, yippee! Love You All. Connahxxxxxx

picture of me grandad and nanaCheckup Time
Posted on: 15/02/2008

Hello everyone. I went to the hospital on Wednesday for my checkup and the Doctor said that everything is fine. I have grown a bit more but lost a bit of weight, that is probably due to Nana taking me off my favourite "mash potatoe" and putting me on brown rice, which is okay. Anyway I went down to see the nurses on "Rupert" Ward where I used to saty sometimes and they were all very pleased to see me and Auntie Rhian was there as well, so we had big hugs and everyone was saying how well I am looking.

Thanks for all your messages and big Valentines kisses to all the girls. Especially the ones who sent me cards yesterdayXXXXX. I have learnt a story for Grandad when he comes home, it is "Three Little Pigs" and I am going to read it all to him for his Birthday Present next week when he gets home. Did everyone see the new "Ben 10" movie on tv on Monday? It was really cool and its on again tonight if you missed it. Thats all for now. Love You All. Connahxxxxxx

picture of me grandad and nanaDay at the Park
Posted on: 10/02/2008

Hello everyone. Hope you all had a good Saturday like I did! Dad took Monty and me for a really long walk, we went down to the park and had good fun. Monty didn't like the roundabout too much but he was okay on the seesaw. Some boys had some electric cars and were racing them, but we only watched from a distance as Monty didn't like the noise of the engines. When we got home we had lunch and then played football outside. Dad's not as good as me as I support "City" and he supports "Spurs"! After we had a rest we went and played Super Mario Olympics on the Wii and had even more exercise so tonight I will sleep really good after all this playing. Good to hear from you Will, hope that your Dad is okay flying those big planes as it has been a bit windy lately. Grandad will be home from Yemen soon but I don't think your Dad fly's there! We may see him when we go to Atlanta later in the year though. Night everyone from a very tired Connah. Love You Allxxxxxxx

PS Hi Chantelle, really look forward to our break together that Auntie Rhian has organised. You will be able to meet my Cousin Pheobe she is really cool and goes to Centre Parks a lot so she will know all of the best stuff to doxx

picture of me grandad and nanaHappy Feet II
Posted on: 05/02/2008

Hello everyone. Did I have a good time at Dance Class last night or what! It was Great and I had a smashing time. There were lots of other boys and girls there, well not too many boys but enough. "Sam" was showing me different steps to do and I was picking it up and the Lady who runs it "Gail" said that I had potential and could come again, but she told Nana that its not all just fun, you have to learn stuff and take tests and exams, but that doesn't bother me as I am good at reading and I got a new book yesterday from school. Anway I will be going back again after the break in two weeks time, so perhaps Grandad will be home to take me then! Everyone have a good day like me. Love You All. Connahxxxxxx

picture of me grandad and nanaExcited!
Posted on: 02/02/2008

Hello everyone. I'm all excited and can't wait till Monday come around, I'm going to "Dance Class". Remember last year I went and saw some other boys and girls in Prestatyn and then they did a show in Rhyl to raise money for my appeal. Well every time I go and see a show I am up dancing in the aisle so Grandad wrote and asked the Lady who runs the classes if I could go for a trail and she said that she would love to have me there. So standby to see how it goes on Monday! Yesterday we had some snow and some hail stones that turned the ground white, so no walks for Monty he would have been really frightened! Good luck to Jan & Family in America when you move house, we are a lot closer to meeting you all now as we have relations in Georgia and Grandad says that we will be going over to see them this year, yipeeee! Everyone have a good weekend, can't wait for Monday to come around though! Love You All. Connahxxxxx PS Well done Pheobe for being really brave last week, once I have been to class we can do dancing together!

picture of me grandad and nanaMonty's Big Walk
Posted on: 31/01/2008

Hello everyone. I'm still being good! I had another new reading book from school yesterday, after school Dad picked me up and when we got home we both took Monty for a big walk, all the way to the end of the driveway. Well he spent lots of time sniffing around in the grass at the scent of the squirrels and he wasn't too bad this time walking on the concrete so he is getting better. Nana says that all we have to do now is train him to let us know when he wants to go out, that might be a bit more difficult. After the walk I was soaking in sweat from all the chasing around in the garden so I had to have a bath and then we played a new game that Dad had got on the Wii with Sonic & Super Mario, it was really good. After dinner I did some reading out of my new book and then it was time for bed. Bye for now. Love You All. Connahxxxxx

picture of me grandad and nanaSpare a moment
Posted on: 28/01/2008

Hello everyone. Could you please take a moment to give a Prayer for George Yeomans and his Family. George lost his fight against Neuroblastoma last Friday. Connah and George almost met at UCL Hospital when Connah went down for his scans last July, but George had just left a couple of days before for treatment in America. Please send positive thoughts to help Georges Family get through this, the worst of all possible times. Thank you All. Debbie, Jim & Connahxxxxx

picture of me grandad and nanaFun in the Garden
Posted on: 28/01/2008

Hello everybody. Hope that you all had a good weekend like me, even the weather wasn't too bad. Me and Dad were playing on the wii on Saturday (Star Wars Lego) I was the best with the light sabre. Grandad phoned while we were being attacked by Storm Troopers so I couldn't talk to him for long! We all went in the garden yesterday for a run around as there was no rain (for a change). So we let Monty out and he had a great time, even though he is small he is really fast, especially when you are trying to catch him. He doesn't like walking on the driveway though, his feet come to a complete stop when he touches it. I have a new reading book with more words than pictures, it is really hard, but I am doing well, Grandad says that I will soon be reading his books. Looking forward to going to Centre Parks with Phoebe at Easter time, thanks for setting it up Auntie Rhian, also Chantel and her Mum will be traveling with us (Alder Hey & Glan Clwyd hospital pals) so we should have a really good time. Thats it, have to be up early for school tomorrow. Glad to hear that you had a really good time at the panto Auntie Sylvia & Uncle Nils. Love You All. Connahxxxxxx PS Please give a prayer to Jacob Marsland who is in hospital and is very poorly at the moment.

picture of me grandad and nanaI've been Good!
Posted on: 24/01/2008

Hello everybody. Well guess what, Ive been really good. I did good reading for Auntie Jenny and got two new reading books from school and then went home and read one straight through for Nana and then I have been drinking water with no juice in, but guess who wasn't good? It was Monty, he had a wee on the settee when Auntie Rhian was here and then he was chewing one of Nana's cushions so she was not happy and he ended up with a red bottom. Nana said that was a good idea about ice pops in the sauna Joanne, she will try and make some up, but the idea of Nana with a guitar did not raise such a good response! Thanks for the calendar Pheobe's the pictures are smashing. Love you loads, like slimey toads (I'm a boy what do you expect)! I had my hair cut yesterday and the girls have cut it really, really short and spiked it up for me, I hope that I can get a picture of it so that you can all see, Nana says that I look lots more checky than normal. Thats it for now. Love You All. Connahxxxxxx

picture of me grandad and nanaSchool times
Posted on: 18/01/2008

Hello everyone. I have been in school all this week and had a good time, except for when I was in "after school kids club" and Brenda had to tell Kyle and me off for being naughty and running all around the furniture. I had a really nice letter from Cousin Pheobe, thanks Pheobe's hope school is going good for you too! I have been doing well with my reading and I went and saw a play after school with Nana. Things have not been going too good in the sauna though, it gets a bit hot after 15 minutes and I am getting a bit fed up after all these weeks, I do it to sweat out the bad toxins in my body but I really do get fed up with it (some encouragement needed please). Tomorrow I am going out with Nana & Grandad and hopefully one of my friends to a "jungle gym" where I can burn off some all this incredible energy that I have, Nana says that I can wear my new Ben 10 teeshirt that Joe got me for Christmas. Message for Jack, good luck with all the organics mate, I will be able to come round your house for tea sometime. Monty went to the vet this week and had his last injection and had a "chip" put in and guess what, he is as brave as me cause he didn't cry either. Must go and get to bed as its a busy day tomorrow. Love You All. Connahxxxxxx

picture of me grandad and nanaMy Appeal
Posted on: 13/01/2008

Hello everybody. Nana, Grandad and Me went to visit some of the people who do so much to raise funds for my appeal so we would just like to say Thank you to all of the Nursery's that sold tickets to Santa and for raising money for my appeal. Also thanks to Julie from D1 Hairdressers in Prestatyn for donating to my appeal. Plus a Big thank you to Joanne and Excel Securities who made a Terrific donation last year and who I sent a one of my paintings to (see photo's). I will also be sending one of my paintings up to The Mall in Aberdeen to those Lovely Ladies Linda & Morag who gave me a very special time with Santa. To Mel who jumped out of a plane for me and didn't scream (so she says) thanks very much. Plus thank you to Kerry and her Family, we would send you a painting but you probably have enough of your own and to all of the people who send in donations through "PayPal". There are lots more people to mention like Auntie Sylvia, Auntie Jean, Auntie Pat, Auntie Carol, Auntie Jan. Auntie Jenny and a specail thank you to Dave for providing this site and looking after it and to lots lots more. Just to say Thank you to Everyone who helps me. I Love You All. Connahxxxxxxx

 

picture of me grandad and nanaBusy Times
Posted on: 12/01/2008

Hello everyone. I have been in school all week (afternoons) and been very busy. We have done lots of reading and I got 4 new reading books in one week. I rubbed a bit of skin off my foot at school so Nana & Grandad took me for some new shoes today. When we were in the shop (Clarks) Grandad saw that my shoes were diferent sizes. I had mixed one up with my friend Tommy at school and when we phoned his Mum Sarah she said he had two odd shoes as well, what a pair of "Narners"! We have had great fun playing with Monty and we have introduced him to Scoobie (Tortoise), Scoobie watches him from inside his shell and Monty has a good sniff round him.

Auntie Sylvia got her new bed this week and now she can cuddle up nice and warm on those cold Scotish nighs. Grandad was out this morning cleaningout all of the gutters on the only day it has not rained for ages, whilst me and Monty helped Nana around the house. I sent two letters this week, one to Farther Christmas saying "Thank You for all of the nice presents" and one to Sparky the Drangon (school book) saying please come and eat some of our grass as its too wet to cut. Thats it for now as its very late. Night night, Love You All. Connahxxxxx

Messages: Thanks Joanne for putting my picture up at work, watch out for your photo tomorrow. Love you loads too Phoebie and can't wait to see you. Elle you can come and play anytime. Nicola, we will see you next week for a hair cut! Auntie Carol, I hope that your eye gets better soon. Auntie Pat, glad to hear that you are better, Nana will give you a call next week. Emma, go for a puppy now they are too much fun to wait till your Birthday! Please all take a minute to think of George Yeomans he has the same illness as me and is not good at the moment. Love Connahx

picture of me grandad and nanaCheckup
Posted on: 07/01/2008

Hello everyone. Me and Monty were really scared last night with all of the high winds, but Grandad got up and closed the windows and gave Monty a cuddle till he was okay and then gave me a cuddle until I went back to sleep. Today I went to see a new Doctor, she was a very nice lady and her name was Dr. Bernadette. She gave me a checkup and then talked to Nana & Grandad whilst I played with a pirate ship and some figures from Shrek. She told them that I looked very well and to keep doing what they are doing and to brring me back every 3 months for a checkup. This means that I will be checked every 6 weeks, at Glan Clwyd by Dr. Hesseling and then 6 weeks later by Dr. Bernadette. They have different toys in there rooms to play with so that is good. Its back to school tomorrow and I can tell all of my friends about my Christmas presents and about Monty, yipee! Thats it, bed early tonight Nana said as we are up early in the morning. Night night everyone. Love You All. Connahxxxxx

picture of me grandad and nanaFun at the Panto
Posted on: 06/01/2008

Hello Everybody. What a Smashing day we had today. I did some good school work and Monty sat in my lap whilst we had a story and I did my new Power Rangers jigsaw. Then after lunch we went to see Aladin at Rhyl Theater, it was really good and I came out with a sore throat after doing all the "Booing, He's behind You, Hissssss, Singing songs and Cheering" its was Great fun. Then we came home and Monty was naughty on the carpet, he must have been excited to see us back. But yesterday he was very good, he had a bath in a big yellow bucket and didn't cry and he slept right through the night and didn't wake Grandad up till nearly 7am! Nana said thats because she put a hot water bottle in his bed to keep him warm. We took all the Christmas lights down today as well so we have been really busy. Any way its time for bed and tonight Grandad is going to read me one of "Winnie the Witch" stories, last week it was "Wind in the Willows", which Auntie Sylvia & Uncle Nils sent me. Night night everyone. Love you All. Connahxxxxxxx

picture of me grandad and nanaYear End Summary
Posted on: 03/01/2008

Dear All. Thank you all so much for giving up your time and effort to support Connahs Appeal. Our total now stands at £54,383.80. We are now doing our Year End Books. Could we ask everyone who has contacted us and informed us that they have raised money for Connah's Appeal and not yet sent it in to please do so. We are looking forward to receiving approximately a further £5,000 towards Connah's Appeal from those of you who ran marathons, jumped out of airplanes, held parties and had fund raisers at work. Once again thank you all. Connah is at the moment in very good health as you can see from the pictures, We hope to be able to update everyone as to what is happening inside of him in the next few weeks.

Best Regards

Debbie, Jim, Chris, Connah & Montyxxxxxxx

picture of me grandad and nanaYear End
Posted on: 31/12/2007

Hello Everybody. Just a message from Connah's Grandad at the end of a very dramatic year to say thank you to everyone who has contacted us, supported us, helped us and taken the time to give a special prayer for Connah over the last 12 months. Yesterday was a very special day, not only did Connah go and visit his Great Grandma and Cousins in Glossop we also went to Leeds and picked up a very special adition to the family. When Connah was first diagnosed back in Aug 2006 he had a special friend called "Monty", with the amount of time we were spending at hospital and because Connah was constantly neutrapenic we decided that we had to take Monty back to the rescue shelter where we had got him from, he was a loveable dog and was very soon re-homed. Any way as Connah got better he wanted Monty to return. This couldn't happen as we did not think that the time was right and of course Monty was living with someone else. As time past Connah kept returning to the subject of Monty and we decided that it was about time Monty that Connah had a new friend. So we looked for a friend that was manageable and would fit the bill as a good play mate. So we traveled up to Leeds yesterday and picked up a Dachshund puppy and guess what Connah loves him and has decided that Monty has returned in spirit just in a smaller form. So he has also be named "Monty".  I'm sure that there will be lots of "Connah & Monty" stories to relate in 2008. Good Luck to everyone in the New Year. Love to you All, Debbie, Jim, Chris, Connah & Monty xxxxxxx

PS Have just read todays messages and as always we are really pleased that people all round the World read Connah's site and leave messages. Thanks Katherine for your message, perhaps I "Embelished" a little bit on the tea drinking, they are just fruity chinese tea bags you can buy in the super market. Anything that we give Connah we always checkout thourghly with medical practitioners before hand and try ourselves. I can hear giggles from the livingroom, I wonder what they are up to now!

picture of me grandad and nanaChristmas Update
Posted on: 27/12/2007

Hello Everyone. Well the days of Christmas have been very busy, I have had lots of presents to unwrap and lots of playing to do and there has been some good movies to watch on tv and lots of good stuff to eat, all organic though and I even started having Chinese herbal tea to help me de-tox, it was a bit yukki, but Grandad cheayed and gave it me to drink when I was in the sauna so I drank it all. I hope that you all had a very good Christmas like me . Thank you to everyone who has left messages and sent me cards and presents and given time to think of me and wish me better. I am really well, except for a stye in my eye (where I put goo from one of those aliens that grows in water). Night, night everyone. Love You All. Connahxxxxx 

picture of me grandad and nanaRipping Time!
Posted on: 15/12/2007

Hello everyone. Guess what I have been doing? I have been ripping the wallpaper off the wall in the dinning room, but its okay as Nana has decided to decorate before Grandad comes home (3 more sleeps, yippeeeee). So I was helping her and having a good time too. Theres more fun to come though, she might want me to help put all that guey paste on the paper, what do you think? We had our School Nativity play on Wednesday & Thursday and I was a Star over Bethlehem and we all had to sing "Away in a Manger" I hope someone made a video for Grandad to see, Nana says that she hopes not as this star spent most of his time on stage with his finger up his nose, oh no!Lots of parcels keep coming with the Postman, but Nana keeps saying that they are for Grandad, I don't think so! Thank you Joanne for the present, Nana put it under the tree & thank you girls for all those messages with the kisses at the end, I will be coming round to collect with my miseltoe. Must go and do some more paper pulling. Love You All. Connahxxxxxxx

picture of me grandad and nanaOh Oh, I'm in Trouble!!!
Posted on: 07/12/2007

Hello everybody. Guess whose in trouble, again? It wasn't my fault. I was at "After School Kids Club" and we were all chasing around so we decided to chase each other outside. Well it was raining, A LOT, we had our coats on but we got soaking wet and guess who was the only one to fall over in the mud just before Nana came to pick me up? You guessed, Me. So not was not pleased and rushed me home and stripped me off and threw all of my clothes, even my coat into the washing machine and my shoes were soaked so they had to go to dry out before they could be cleaned. So when Grandad phoned I was just getting my pyjamas on and Nana told him what had happened. So he wanted to talk to me and guess what I told him? I told him how relly good I had been at school doing my reading and that he won't believe my new reading book when he comes home as it has lots and lots of words in and It will be the school Christmas Fair tomorrow and I have to learn my part for the School Christmas Play next week and guess what, he forgot albout asking me how I had got wet and what happened to my clothes (hehehehe). I'm sure he will have forgot by the time he phones tomorrow! Thats it for now. Love You All. Connahxxxxx

PS We are all glad that you had a smashing time in Aberdeen Jan and Family. I bet it rained though, it did all the time  we were there! But we had a really Great time! So we will go back in Summer time to see iall the buildings sparkle! Glad you liked the picture and that it got home with you okay. Thank you Joanne and Grandad will be phoning you when he comes home as we will try and come and see you at work in the Big City! Love Connah.  

picture of me grandad and nanaSanta's Rain Day
Posted on: 03/12/2007

Hello everyone. What a day we had yesterday. Nana had made lots of preparations for Santa coming to visit and nearly everything was blown away by the huges winds and rain that we had. Santa couldn't come to the garden as it was too bad so Uncle Billy & Auntie Heather, Tony & Debbie, Christian & Kerry and lots of other people rallied round and help move everything, including the snow down to the village center, but as they were setting up they were told that they couldn't use it as there was going to be a dog show at 2pm. So then everyone rushed round and moved everything again to the old School house. Well everyone did a Great Job and Santa finally arrived and came through part of Gronant with his sled. All the kids were very glad to see him and he spoke to everyone. We had musical chairs and even snowball fights and Santa told me all about Mrs Santa and life at the North Pole. We had a really good time. But he had to leave early as Santa's Donkey (couldn't bring raindeer due to the 'Blue Tongue" outbreak) was very cold and wet in the bad weather. So sorry to the children that missed him and he will remember you, if you have been good "like me". Nana is very busy doing lots of cleaning up today. So I would like to say "Thank you Nana for getting Santa to come and see me again this Year". Perhaps we can go and see him next year at home? Thats it for now as I am getting ready for Auntie Jenny coming as we have lots of hard work to do today. I have gone up onto another level of reading books as I am doing very well with my reading. Love You All. Connahxxxxxx

PS Thank you to everyone who helped Debbie organise this whilst I am away. The weather was awful yesterday and it was really good of you all to put so much effort in. If I have missed you out from above its only because you don't get long for 20p on the phone from where I am. Thanks again. Jim

picture of me grandad and nanaGetting ready for Christmas
Posted on: 27/11/2007

Hello everyone. Guess what I did when I was helping Nana get ready for Christmas? Well she was getting some of the Christmas things out of the attic with Ryan and his friend, they would not let me climb up the ladder as they thought I might fall and hurt myself, so guess what I pushed the ladder up till it caught on the catch and they couldn't get out of the attic and I couldn't reach the catch to let it down, so Nana was not pleased, in the end Ryan's friend was the lightest so he had to jump down and release the ladder. In the end they saw it was funny or else it would have been "blue blisters" for me! Then yesterday I was at kids after school club and we were dressing everywhere up for Christmas and had real good fun. I told Grandad all about it on the phone last night. Don't forget everyone Santa is coming on Sunday so if you have chance come down and see him. Love you All. Connahxxxxx

PS Thanks to Jan & Family in America who sent me the special signed photo and have a safe flight to Aberdeen and do lots of shopping at Trinity Mall while you are there.  

picture of me grandad and nanaSchool Report
Posted on: 23/11/2007

Hello everyone. Guess what arrived in the post today? A signed picture of Ray Liotta. That is great, thank you very much for sending it and I will put it up on my wall inbetween Spiderman and Power Rangers. I had a good ride on my bike yesterday as Grandad brought it to school to meet me so that I could ride it home, I had been telling all my school mates that my new bike was coming all day long. My teacher was so glad when it finally arrived and she could see it! Yesterday Nana went to the Teacher / Parents meeting to see how I was doing at school and she was told that I am doing really well and that my reading and writing is good and that I am well up to standard within the class. So well done Auntie Jenny and everyone who helps me with my reading. Must go as today I am a "Sea Serpent" in the play at school for "Diwaali", Grandad will miss it but Nana will be there to tell him all about it. Love You All. Connahxxxx

picture of me grandad and nanaBiking All the way!
Posted on: 21/11/2007

Hello everyone. We are now over our fabulas trip to Scotland. I have been doing really good school work and have had two new reading books since I have been back and Auntie Jenny has today asked if I can go up onto the next level of reading, how good is that. I am driving Nana nuts though, since I have been home the weather has been too bad to go outside, so I have been riding my new Spiderman bike altthrough the house, this is okay until I forget to use the brakes and run into the radiators or the furniture. I even sat on it watching tv last night! Thanks for all of the messages, especially the one from Santa. Must go as its time for doing some more school work. Love You All. Connahxxxx

 

PS A special thank you to The First Minister of Scotland for donating a bottle of his Whisky to be auctioned for my appeal and for writing to Auntie Sylvia and to tell her that he is keeping his eye on my progress and thinking about me. Thanks again to all of the lovely people that we met in Scotland that were so kind to us.

picture of me grandad and nanaSliegh Ride with Santa
Posted on: 20/11/2007

Hello everyone. Sorry that Me and Grandad are slow putting this on but we all got back really late from Scotland last night and as I had had a sleep in the car I was wide awake and wanted to play when I got home so we did not get to bed until 1am this morning. On Saturday Nana, Grandad, Auntie Jean and Me set off for Ellon. It was a very long journey, but the weather was not too bad and there was not a lot of traffic. The time passed quickly as everyone took turns at answering my question every 5 minutes of "Are we there yet?". We arrived at about 5.30pm and was met by Auntie Sylvia and Uncle Nils at the B&B where we were going to stay. We met a very nice lady called Mrs Thomson whose house it was and se really looked after us. After a quick wash and brush up we went off to have dinner at the Italian Resteruant in Ellon. On the walk there we met Carol my hearler for Scotland who was with Auntie Sylvia and Uncle Nils. Carol and Jean had lots to talk about as they have both been helping me to get better. Carol is really nice and I gave her lots of hugs and kisses to thank her for helping me. We had a smashing meal, made all the more special by the Owner "Salvatori" doing some really good singing whilst we were eatting. We can all recommend a good night out in Ellon.

 

Next morning Auntie Sylvia, Uncle Nils and Carol picked us up and we drove into Aberdeen to the Trinity Mall where we met Linda (who Manages the Center) Morag, Steve and a lot of her team.  They have been Fabulas in arranging a Very Special Day for me to be Santa's Special Helper and to ride in Santa's Sliegh through the Center of Aberdeen in the Parade. First we had to meet Morven who is getting married next week to Gianni in Aberdeen, she was collecting one of my paintings to give to Jan (from Maryland) who is coming over for the Wedding next week. Have a very good day and All the Best for the future. Then we went and met Santa, how good is that being the First One to meet Santa before Christmas! and he gave me his bell to ring and asked me if I had been Good, guess what I said? Well there is only one answer to that question! He told me not to be frightened of the Raindeer as they are a bit big, but very friendly. Then we rushed off to get in the sliegh. There was a Band of Pipers, Cheer Leaders, People in Fancy Dress and Santa, Grandad & Me in the Sliegh. It was Smashing going through the crowds, I was shouting "Merry Christmas" "Ho Ho Ho" and waving to everyone. The Raindeer were very good, the biggest one did keep leaning into the sliegh and seeing if I was okay. Wen we arrived at the Mall we went into Santa's special place and I helped to hand out gifts to everyone and when I had Santa's "Naughty Helpers" hat on I was ringing the bell Very, Very LOUD! he he he. 

Later we went back upstairs to see Linda & Morag and they had more surprises!!!!! First Santa came back and he had some special gifts for me, a new Spiderman bike (Thanks Argo's in the Mall), Transformers racing car set, Spiderman suit and a web slinger (watch out everyone, spidie's about). Then they had all cards from everyone in the Mall wishing me to get better soon and they had raised a Terrific £1,000.00 from all of the shop's and stall's in the Mall. Thank you very much everyone. We had a Fantastic time. But there was still more to come. After we had some lunch we went to see the night time parade which was also very good and then as it was a bit chilly we went down and got on a bus to go to the "Beach Ballroom" to go and join in the party. It was a smashing time and I did lots of dancing with Auntie Sylvia and Carol and helped the Magician do some magic and then Linda and Morag arrived and I got more presents off Santa and even presents from the Lord Provost of Aberdeen. At the end of the night we got back on the bus and went back to the Mall to pick up our car. I was tired so Grandad carried me the last bit, but it had been a very long day. All of the people that we met in Aberdeen and Ellon were really, really nice and we had a terrific time. Next day we had a long drive back in the rain to Gronant and I fell asleep so the only sound in the car was Nana's "Sat Nav" which kept telling Grandad that he was driving over the speed limit! But he wasn't really, it was 10 miles out on all of the speeds, bet it wasn't made in Britain! Thats it for now everyone. Love You All. Connahxxxxx

 

PS Debbie, Jim & Chris would like to thank Linda & Morag (Trinity Mall Aberdeen), All of their Staff especially Steve (from Leeds), Everyone from Trinity Mall Stores and Stalls. Salvitoria and everyone at the Resteraunt in Ellon. The Lord Provost of Aberdeen, The Healers Carol & Jean, Auntie Sylvia, Uncle Nils and not forgeting SANTA! Love to you All for giving Connah a truely memorable day

picture of me grandad and nanaTaking the High Road
Posted on: 16/11/2007

Hello everyone. We are all over our coughs and colds just in time for our journey in the morning to Ellon & Aberdeen. Today we went to Liverpool to see Baby Emma who we last saw in Alder Hey Hospital some months ago. Since then her treatment has been going really well and soon she will be having her "Hickman Line" out too. It was her 3rd Birthday and we went over with a present for her, a Teddy Bear which Nana had got at Sea World in San Diego. Her Mum and Dad had also got me some presents, lots of new Spiderman games, Great! We are now back home and getting packed for tomorrows "Big" Journey up to Aberdeen to meet Santa, Yipeee. I hope that those Rhiendeer are well rested as they might be in for a " bare back gallop" down the high street on Sunday! Must get to sleep as we are all up early in the morning. Looking forward to seeing you all in Aberdeen. Love You All. Connahxxxxx

PS Grandad said that he used to work for a very nice man from Aberdeen, James Kondal when he worked out in the Desert, hope he is at the Parade!

picture of me grandad and nanaSpecial Day
Posted on: 13/11/2007

Hello everyone. Yippe today was my 6th Birthday and I had a smashing time. I woke up this morning and the Birthday Fairy had been (as I had been a good boy) and left presents all around the house. It was good fun hunting for then and unwrapping them. Then the postman came and delivered more parcels and more cards. Then Aunt Jenny came nd I had to settle down for school work, but not for long as I was too excited, Auntie Jenny hopes that I will pay a bit more attention tomorrow!! Then it was off to school with a big cake to share with all of my friends at break time. Then at home we had more cake and party poppers with Daddy and Nana firing the poppers, a quick visit to "Daisychains" to say hello to everyone and then back to pick up Jack, Kyle and Thomas to take them out for a Birthday Dinner. Then we went back to the house to have icecream and fireworks and open the last of my presents. Thank you to everyone who sent me a message, card, present or was thinking of me on this Very Specail Day. Love You All. Connahxxxx

PS All of the presents were terrific, but there was one that I really, really liked. You can see from my photo's. Thank you very much to Joe Ogden (She is a very nice Lady who lives in Manchester). Baby Emm we will see you on Friday, Nana will give you a call

PPS. This was a Very Special Day for Connah as we had been assured by almost every Medical Professional we have met over the last year that Connah would not be around for this Birthday. Thank you to everyone who has helped and supported us over the last 12 months. Next Birthday we plan to have a Big Party in the garden here and invite as many of Connah's supporters that can attend. Love Debbie, Jim, Chris & Connahxxxx

picture of me grandad and nanaCoughs & Colds
Posted on: 11/11/2007

Hello everybody. Not too good a week this week as both Nana and I have been ill with coughs and colds, I'm a lot better but Nana is hanging on to her's for a bit longer! I have still been in school in the afternoons and it was Kyle's Birthday on Friday, so on Saturday morning Daddy and I walked round to his house and took him his present. Auntie Jenny came last week and she is pleased that I have kept up my reading whilst being away. Auntie Jean came round today and gave me more positive healing on top of what Auntie Carol sent me last night and you know what that means? It means that although I have not been well I am still running round the house and playing and jumping and fighting with Daddy and have 110% energy, thats what all this good organic food and positive healing does for you. "I am Better"!

Today Aunti Ellen and my Cousin Pheobie came to visit and bring me an early Birthday present as they cannot come over from Manchester on Tuesday. So they brought a nice Birthday cake like a football, which we had after dinner and a present, my first "Transformer, Silverstreak". We had a good time playing games and we had "Scoobie" out, but he was a bad lad and poohed on Auntie Ellon's hand while she was holding him. Then after dinner Pheobie and I watched "Spiderman 3" on the tv. Thanks for a smashing time Auntie Ellon & Pheobie.

Tonight I'm having a play with my new Transformer while Nana has a lemsip and a relapse on the settee and then it will be off to bed for school tomorrow. Night, night everyone. Love You All. Connahxxxx 

PS I changed my toothbrush tonight! When I was not well I had to have a very soft toothbrush (same as a babies) so that it didn't make my gums bleed. Now that I am Better I have got a new "Buzz Lightyear" electric toothbrush, Yipeeee!

picture of me grandad and nanaHome Again
Posted on: 05/11/2007

Hello everyone. Just a short letter tonight as we are all really, really tired as we just got home from America today. The nice people from Delta Airlines brought us home safely. First from San Deigo to Atlanta and then after a short stay we then flew to Manchester. Everyone was very nice and reallly looked after us and when we got to Manchester the Captain let me have some photo's taken in his Pilots seat and then he gave me his Special Pilots Wings. Now I can fly any airplane I want! Thanks to all of the nice Ladies who looked after us on our way home. When we got to Manchester Uncle Clive was waiting to pick us up and take us back to Gronant, thanks Uncle Clive. I was planning on going to school in the afternoon, but I have a cold and I fell fast asleep on the settee, while Nana cleaned all the house. Later on we went round to Auntie Heather and Uncle Billies for their Spectacular Firework show, it was really good and I had lots of fun and I showed everyone how to do bowling on the Wii as I am really good at it. Its good to be home again and tomorrow I will see all of my friends at school as Nana has put lots of "Vick" on my chest before going to bed so I should have no cold in the morning. Night night everyone. Love You All and thank you for all of your Positive Thoughts. Love Connahxxxxx

PS. Please everyone could you say a special Prayer for Jesson tonight.  

picture of me grandad and nanaShamu
Posted on: 03/11/2007

Hello everyone, I had a really great time with Shamu yesterday and the Dolphins and Seals and all of the other smashing friends I made at Sea World. Grandad and me went down a water ride and we both got soaked through as people were firing water guns at us, which didn't help Grandads cold, but it was really good fun. I had my picture taken with a Big Walrus and we went on the Sky Train right up in the air. There are also lots of different cartoons on the tv over here, including a new Ben 10 movie, which starts in two weeks but we will miss it as I am coming home tomorrow. Guess what I have got Baby Emma in Liverpool for her Birthday? Sorry Nana says that I can't tell so you will have to waite until we come over to Liverpool to see you. Bye for now. Love You All. Connahxxxxx

picture of me grandad and nanaConnah has breakfast with Movie Star
Posted on: 01/11/2007

Hello everyone. Guess who I had breakfast with today? I was having my toast and Grandad said to go and shake hands with the man on the next table and say "We like your movies". He was very nice and asked my name and how was I doing and where I came from, I told him Connah and that I was fine and that I am from Wales. Grandad said that his name is "Ray Liotta" and that he had been in lots of really good films. He was sat with his friend David who helps him make movies. Perhaps he will fly over to Wales and have tea with Santa and me when he comes to visit on the 2nd December. We are leaving the hotel today and going to another hotel nearer to Sea World in San Deigo so that we can go and see Shamu tomorrow and then guess what? We are going shopping for Ben 10 for my Birthday in two weeks time. Hope that you all have an exciting day like me today. Love You All. Connahxxxx

picture of me grandad and nanaSad Day
Posted on: 30/10/2007

Hi Everybody, only a short message today. Connah is fine and doing really well, not much sunshine today though, which reflects our mood. Jesson Wragg's Mum Helen e-mailed us today to say that Jesson had lost his fight against NB after 4 long years of fighting. We would like everyone to say a Prayer for Jesson and his Family. Thank you. Love to Everyone from Connah, Debbie & Jim xxx

picture of me grandad and nanaSplashing Nana
Posted on: 29/10/2007

Hello everyone. What fun we are having. I was running in and out of the "Big Sea" yesterday, it was too cold to swim but we had loads of fun being chased by the waves up the beach, Grandad said his feet were like blocks of ice. Later on we went back to the hotel and me and Nana went in the swimming pool and I was racing her and then when she was beating me I jumped on her back. Grandad has some photo's which he will post when we get home. Everyone is very nice and the food is really good, I eat it all. I asked Grandad if I can drive one of the little carts that we see everyone in, but he says that you have to be over 65 and a golfer to drive one! We are going to Sea World in a couple of days to see Shamu the Whale, I wonder if he is from Wales too! We are all okay and "I AM GETTING BETTER". Love You All. Connahxxxx

picture of me grandad and nanaTrip to America
Posted on: 25/10/2007

Hello everyone. Well what a very long day we had on Monday, we had one very long flight to New York and then another long flight to a place called San Deigo. When we were flying in it was dark and you could see all of the fires blazing away, but we are okay and the weather is nice and warm. Everyone is being very nice and I have been in the swiming pool and down to the beach, too rough to swim though. We have seen some people here who have had a look at my condition, they really can't believe how much energy I have and how much playing I do. Grandad has some photo's but you will have to wait until we come home before he can put them on my site. Any way must go as its time for breakfast here. I was up at 2am wide awake watching cartoons when Nana and Grandad were fast asleep still. See you all soon. Love You All, Connahxxxx

PS Thank you for all of the new messages on my site. Please keep all of the positive thoughts coming my way as I really, really need them.

picture of me grandad and nanaUpdate
Posted on: 18/10/2007

Hello everyone. I was at the hospital yesterday to see Dr Hesseling, he is nice but his hands are still cold! I got weighed and I am now 28.3kgs and I have grown to 115cm, that is really, really big. The Doctor said that I was fine and that my bloods were all okay and he will see me again in another 6 weeks. So it was back home to tell Scoobie and then into school. We have all had to learn a new song as our Head Teacher Mrs Homard is leaving soon so we were all practicing it in the car coming back from the hospital.

I had a message on my website today from a Lady in Scotland called Morag who has asked if I would go and be Santa's Special Helper up in Aberdeen on the 18th Nov. I checked with Scoobie and he will be okay for a couple of nights with Ryan so YES PLEASE is my answer to that and thank you very, very much, can't wait to show those Cheer Leaders how to really Dance! Night, night everyone. Love You All. Connahxxxx

picture of me grandad and nanaOne more Sleep!
Posted on: 15/10/2007

Hello everyone. Well only one more sleep and then Grandad will be home again. Nana said Yippeeee! Because then she will be able to have a rest while Grandad chases me round. I said Yippeeee too as Grandad does good swings and rides on his back, until it gives out. I am not looking my best though at the moment as when I was in "After kids Club" I was chasing round after Dean and I slipped and bashed my legs and cheek. Now I have a big bruise on my face, next time I will listen when I am being told to stop, maybe! I forgot to tell Grandad about the new painting of Spiderman that I have on my wall, Sean painted it for me and you can all come and see it when you visit. Thanks Sean. Nana had me weeing into a bottle yesterday, she is funny, sometimes Ican't get it all in the toilet so how do I get it into a bottle! It is for my next Monthly check up this week with Dr Hesseling at Glan Clwyd, he is nice but his hands are cold! Well time to go and get ready for school, Auntie Jenny is coming today. Love You All. Connahxxxxx

picture of me grandad and nanaA day in the Life of Scoobie!
Posted on: 10/10/2007

 

Hello everyone. I have been a really good boy lately and done lots of good school work and Helen came and I did some extra work on my sounds. Any way I am always telling you about that, so I want to tell you about my friend Scoobie and what a good time playing together that we have. But I will let him tell you as I do all of the talking.

Wake up to the feeling of raising swiftly into the air, open my eyes and I am in the air! Flash from my nice warm bed, out of the kitchen, through the dinning room. Flashing over the well polished dinning room table I can see my reflection, a giant hand is holding me up in the air, amazing! Into the living room and descend at stomach churning speed to land gentle as a feather on the carpet. I just have time to look around before a huge green disk comes hurtling towards my head and just hovers in front of my face, Oh its my favorite, cucumber! Panic over. Breakfast finished I poke my head out for a quick look to see what is happening. I am surrounded by cars, time to make my escape, the cars chase me, run faster, the cars speed up, move quicker, the cars catch me up! Head back in shell and just wait for the Power Rangers to arrive and rescue me. It would be quite cozy in my shell and I could get some more sleep in, if only someone would stop shouting “I AM BETTER”, EVERY 5 MINUTES. What us Tortoises have to put up with sometimes!! 

Thats good fun that we have, but I don't put the cars too close and I wouldn't drop him when he is flying as he is my good friend. He will be a lot quicker when he gets bigger I bet! Thats it for now. I AM BETTER. Love You All. Connahxxxx

picture of me grandad and nanaMr Entertainment!
Posted on: 09/10/2007

Hello everyone, Well what a Smashing night I had on Saturday in Blackrod. Thanks to Auntie Pat Charles, Sean, Carole and Dorothy and DJ Steve. I had a great time dancing, with Nana, Auntie Carol, (Uncle Terry doesn't dance though!) Amanda and everyone else. I also helped Steve out picking the music and I helped Auntie Pat auction off some of the paintings. We raised lots of money with the raffle and the auction 1,650.00 for my Appeal. Thank you very much to everyone who came, I hope that you all had as much fun as I did and thank you to Auntie Pat for arranging everything. I had a good sleep Sunday, I hope that you all did too! "Scoobie" missed me while I was away, but I looked after him until I flaked out on the settee. I am so glad that I have lots of Friends all around, t